Where the children are
26 children in 12 countries have come forward through the SPG52 caregivers' group. Each dot is one child, placed on their country and coloured by age band. Nothing more is shown: no names, no cities, no stories.
- Under 3 (6)
- 3 to 7 (3)
- 8 to 12 (3)
- Teens (4)
- Adults (2)
- Age not shared (8)
| Country | Children | Under 3 | 3 to 7 | 8 to 12 | Teens | Adults | Age not shared |
|---|---|---|---|---|---|---|---|
| United States | 6 | 1 | 2 | 1 | 1 | 1 | |
| Spain | 4 | 2 | 1 | 1 | |||
| Germany | 3 | 1 | 2 | ||||
| Croatia | 2 | 1 | 1 | ||||
| Italy | 2 | 1 | 1 | ||||
| Poland | 2 | 2 | |||||
| Romania | 2 | 1 | 1 | ||||
| Belgium | 1 | 1 | |||||
| France | 1 | 1 | |||||
| Kazakhstan | 1 | 1 | |||||
| Pakistan | 1 | 1 | |||||
| United Kingdom | 1 | 1 | |||||
| Total | 26 | 6 | 3 | 3 | 4 | 2 | 8 |
How to read it
- One dot per child. Dots in the same country are grouped together; their position inside the group means nothing.
- Colour is the age band at the time the family shared it. "Age not shared" means the family has not told the group.
- Europe is shown in a close-up because nine of the countries sit within a few hundred kilometres of each other.
- The table under the map carries the same data for screen readers and for anyone who prefers numbers.
- Families from two more countries are in the group but have not shared details, so they are not on the map.
Why a map at all
Because SPG52 is spread thin. A neurologist may see one child in a career. A family may be the only one in their country. Seeing that there are others, and roughly where, is often the first thing a newly diagnosed family asks for. It also shows why the fundraising is global: there is one gene therapy program for all of these children, and it is being funded family by family, country by country. See how to give.