This is information, not medical advice

curespg52.com is written and maintained by parents of children with SPG52. None of us is a physician, and this site is not the research team. Everything medical on these pages is drawn from published, peer-reviewed research, clinical references such as GeneReviews, and official trial records, and each number is traced to its source so that you and your child's doctors can check it.

• Nothing here is a diagnosis, a treatment recommendation or a substitute for the advice of a qualified clinician who knows your child.
• Published percentages describe groups of patients. They do not predict what will happen to any one child.
• Research changes. Pages carry a "last reviewed" date; anything newer than that date may not be reflected.
• Statements about the gene therapy program come from the university's public releases and may lag behind the official UAB page, which is the source of truth.
• We do not answer medical questions by email. Please bring them to your child's care team. If you believe a child is having a medical emergency, call your local emergency number.

If you find an error, tell us through the contact page; corrections are posted on the updates page.