Photo consent form
No photo of any child appears on this site, in our press materials or on our social accounts without this consent, signed by a parent or legal guardian, for that child. Print it, sign it, and send it to us; or ask us for a copy to sign electronically.
Consent to publish a photograph of my child
Child's first name (or the name you want used, if any): ______________________
Parent or legal guardian: ______________________ Relationship: ____________
Email: ______________________ Country: ____________
What I am agreeing to
I give Cure SPG52 (curespg52.com, provided by Leo's Light | Cure SPG52) permission to publish the photograph(s) I supply, as ticked below. I understand that nothing is published that I have not ticked.
- ☐ On the curespg52.com website (families page)
- ☐ In the press kit, supplied to journalists on request
- ☐ On Cure SPG52 or Leo's Light social media accounts
- ☐ In printed fundraising materials
What may appear with the photo
- ☐ No name at all
- ☐ First name only
- ☐ Country
- ☐ Age or age band
- ☐ A short caption that I have approved in writing
What will never be published
Surname, city, school, medical details or diagnosis specifics beyond "SPG52", and any photo you have not supplied yourself.
My rights
- I can withdraw this consent at any time by emailing hello@curespg52.com. The photo is removed from the website within seven days; printed material already distributed cannot be recalled.
- I can ask what has been published and where.
- This consent lasts until withdrawn, or until my child turns 18, whichever comes first. When my child is old enough to have a view, I will ask them.
I confirm that I am a parent or legal guardian of the child, that I have the authority to give this consent, and that any other parent or guardian with that authority agrees.
Signature: ______________________ Date: ____________